“Woke up, felt like shit, went to work, felt like shit.”
“That’s called a hangover, Amigo”
no, no, that’s my life with chronic illness.
A lot of people in my day to day life ask me “what’s the worst thing about your illness?”, and I pause for a minute while I think through the list of symptoms and side effects I’ve memorised over the past seven years. Then I realise that actually, I could handle all of that without complaint if it wasn’t for the fact I know it’s chronic. The light at the end of the tunnel that most people get with illness is only there for a short time and then I’m at another tunnel, and that’s how it’s going to be for the rest of my life. No matter how hard I try to be healthy, no matter how healthy I become or appear to be I’ll never be quite healthy enough, I’ll always be completely dependent on drugs, always just delaying the inevitable. That’s the worst part.
My young age does not negate the fact that I am in pain literally every second of every day. My young age should not mean that I am denied the medications I need to be comfortable.
Diseases do not care that you are young, they will not be easier on you because of your age.
I am not drug-seeking. My pain is real. I am just trying to live my life.
“…when the truth is, not all cancers matter”
Just because something is unlikely to kill you, doesn’t mean it doesn’t matter. For something to matter it has to be important or significant which means all cancers matter. Being diagnosed with cancer, of any type, is a significant event in not just the patient’s life but the life of their friends and family.