1. the invisible illness i live with.
2. i was diagnosed with it in the year
3. but i had symptoms since
4. the biggest adjustment i have had to make is
Learning how to effectively manage my energy (thyroid)
Learning what no to eat/drink (hypoparathyroidism)
5. most people assume
I feel ok
6. the hardest part about mornings is
getting out of bed, it’s like I’m 10x heavier in the morning
7. my favorite medical tv show
8. a gadget i couldnt live without
9. the hardest part about nights is
getting to sleep
10. each day i take _ pills
6 – Thyroxine x2 alfacalcidol x2 calcichew x2
11. regarding alternative treatment
I’ve never tried it, I’d rather use traditional methods but I wouldn’t rule it out
12. if i had to choose between an invisible illness and a visible one
Invisible, even if someone can see how you’re ill, they’re still not going to understand what its like to live with it, so I’d rather have control over who knows I’m ill
13. regarding work and career
I have a really good career, I want to stay with this company for as long as they’ll have me. My boss is very understanding which is fantastic and gives me as much time as I need.
14. people would be surprised to know
I’m in pain every day (thanks low calcium!)
15. the hardest thing to accept about my reality is
it’s for life.
16. something that i never thought i would do with my illness that i did
I never thought my illness would hold me back.
17. the commercials about my illness
imply everyone with a thyroid problem is a fat narcoleptic
18. something i really miss doing since i was diagnosed
19. it was really hard to give up
Drinks with phosphoric acid in
20. new hobby i have taken up since my diagnosis
Web design, I took it up pretty much straight after my op and now I use those skills at work!
21. if i could have one day of feeling good again would i
No. It would only make me want to feel that way all the time again, I’d have to come to terms with being sick, all over again
22. my illness has taught me
To be nicer to people and more understanding.
23. want to know a secret? one thing that people say that gets under my skin is
“at least you had the good cancer” Yeah it left me with 2 chronic illnesses which will probably cause other chronic illnesses. Thyroid cancer, the gift that keeps on giving.
24. but i love it when people
Ask me about my scar
25. my favorite motto, scripture, quote that gets me through tough times is
“There are always those who face their fears and there are always those that run away”
I don’t know who said this but my English teacher wrote it down in my leavers book.
26. when someone is diagnosed i would like to tell them
You’ll be ok, you’ll learn to live with this. It will be tricky to start off but you’ll get there in the end. Don’t let the bad days drag you down.
27. something that has surprised me about living with an illness
You meet the most amazing people
28. the nicest thing someone has done for me when i wasnt feeling well
When I was having RAI I was sick and started crying a nurse with no protective clothing came running in and hugged me until I felt better, even though she was putting herself at risk.
29. i’m involved with invisible illness week because
I want to raise awareness!
30. the fact that you read this list makes me feel