Thyblog

Do you agree?

Tue, 21 May 2013 18:41:38 +0100

This is a comment I received on a question I posted a while ago

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Photo

Mon, 20 May 2013 13:58:33 +0100

Photo

Mon, 20 May 2013 12:51:41 +0100

anxiety-is-a-bitch: fed up of having to take these everyday and...

Sun, 19 May 2013 22:34:02 +0100

anxiety-is-a-bitch:

fed up of having to take these everyday and i have to have them for the rest of my life…

ditto

“Woke up, felt like shit, went to work, felt like shit.” “That’s called a...

Sun, 19 May 2013 22:29:51 +0100

“Woke up, felt like shit, went to work, felt like shit.”

“That’s called a hangover, Amigo”

no, no, that’s my life with chronic illness.

The Worst Part

Sun, 19 May 2013 00:37:12 +0100

A lot of people in my day to day life ask me “what’s the worst thing about your illness?”, and I pause for a minute while I think through the list of symptoms and side effects I’ve memorised over the past seven years. Then I realise that actually, I could handle all of that without complaint if it wasn’t for the fact I know it’s chronic. The light at the end of the tunnel that most people get with illness is only there for a short time and then I’m at another tunnel, and that’s how it’s going to be for the rest of my life. No matter how hard I try to be healthy, no matter how healthy I become or appear to be I’ll never be quite healthy enough, I’ll always be completely dependent on drugs, always just delaying the inevitable. That’s the worst part.

"And once the storm is over you won’t remember how you made it through, how you managed to survive...."

Tue, 14 May 2013 17:41:21 +0100

“And once the storm is over you won’t remember how you made it through, how you managed to survive. You won’t even be sure, in fact, whether the storm is really over. But one thing is certain. When you come out of the storm you won’t be the same person who walked in. That’s what this storm’s all about.””

- Haruki Murakami

(via thecvsgirl)

When my thyroid levels are off:

Sun, 12 May 2013 16:01:06 +0100

hotmessbritt:

I love this!

Sun, 12 May 2013 13:23:03 +0100

I love this!

did-you-kno: Source Pretty sure extracting my spinal fluid...

Wed, 08 May 2013 18:15:35 +0100

did-you-kno:

Source

Pretty sure extracting my spinal fluid and putting it into a healthy person would have the same effect.

chronicallyvegan: My young age does not negate the fact that I am in pain literally every second of...

Wed, 08 May 2013 18:12:55 +0100

chronicallyvegan:

My young age does not negate the fact that I am in pain literally every second of every day. My young age should not mean that I am denied the medications I need to be comfortable.

Diseases do not care that you are young, they will not be easier on you because of your age.

I am not drug-seeking. My pain is real. I am just trying to live my life.

“…when the truth is, not all cancers matter” Just because something is unlikely to kill...

Mon, 06 May 2013 23:10:46 +0100

“…when the truth is, not all cancers matter”

Just because something is unlikely to kill you, doesn’t mean it doesn’t matter. For something to matter it has to be important or significant which means all cancers matter. Being diagnosed with cancer, of any type, is a significant event in not just the patient’s life but the life of their friends and family.

The diagnosis changes everything for the patient, there’s the obvious health implication, but as Louise Davies M.D. implies it’s better to just wait and see lets skip this and imagine I’d never been treated.

If I’d never been treated I’d spend every day knowing that there’s something growing inside me that could kill me, it wouldn’t matter to me how slowly it grew, it would still be all I could focus on. It’s bad enough knowing it could come back, but at least I can get on with my life now.

Your thyroid is in a pretty obvious place and my tumour was visible, as are many others. My scar is a mess but the majority heal well, my tumour if left untreated wouldn’t have shrunk. Can you imagine having to answer the “what’s wrong with your neck?” question with “oh, that’s just my tumour”. Self-conscious is an understatement.

Now let’s get down to the boring stuff, finance. If I had cancer for 6 years rather than being clear for 6 years do you realise how hard it would be for me to get any insurance or a mortgage? If I managed it I’d have sky high premiums. You, Dr Davies, have a doctors wage so you probably won’t grasp the significance of this, but for most of us the difference between prices would have a dramatic impact on the patients quality of life.

It’s true that thyroid cancer probably won’t kill me, but it completely changed my life. Explain to me how getting diagnosed with cancer doesn’t matter. I have never been the same since being diagnosed; I can never go back to my old way of thinking and feeling, I’ll never be the same. If I hadn’t been treated cancer would have completely consumed me, treatment allowed me to get on with my life.